NO DRIVING.... AGAIN!

Well, I called my Neurologist yesterday to inform them of all the seizures I've had over the last couple of months.  My original diagnosis was JME (Juvenile Myoclonic Epilepsy).  This is a form of epilepsy that causes you to have seizures within the first two hours of waking up.  I thought they were crazy when they first told me that. lol  But it actually exists.  All of my seizures over the past 6 years have been in the morning.  My most recent seizure, last week, occured at about 10pm just after I got into bed. 

After calling my Neurologist, they told me absolutely NO driving.  Suprise, suprise. :(   I had also tested positive for Lupus a couple of months ago when my primary physician ran a full blood panel.  However, he told me it was possible to get a false-positive.  I informed the Neuro nurse of this as well.  She said, "oh good". lol Then explained that she wasn't saying oh good as in great.  But oh good as in maybe we have an explanation for your seizures afterall.  Thousands of people with Epilepsy have no cause.  I am one of them.  I don't WANT to have Lupus.  But I DO WANT an explanation.  Personally, one of the biggest problems I have with it is the fact that I have no reason or cause or explanation.

The nurse said that the doctor wants to see me on Monday.  I guess there could be a few different things he could want to do.  I'm guessing either 1. Change my medication again (I'm already on Lamictal and Keppra)  2.  Do another MRI and EEG  3.  Get to the bottom of the Lupus diagnosis and hope that if we start to treat that, it could help the seizures.  Or 4. Discuss other options.  I'm not really sure. But as long as I have a Neuro that is willing to keep trying, I can't complain. 

Happy Veteran's Day!

Happy Veteran's Day to my husband and our soldiers past and present.  A special prayer to those that are suffering from TBI and epilepsy. <3

I WEAR THE RIBBON

I have 449 friends on Facebook. 1 in 26 people will develop epilepsy in their lifetime. That means 17 of them will end up with Epilepsy at some point in their lives. 1 in every 10 people will have a seizure in their lifetime. That means almost 45 of them will have at least 1 seizure! Will it be you? Why wait? Help support Epilepsy Awareness NOW! Please be kind enough to change your profile picture to this photo or any other epilepsy awareness photo for the month of November. If you can do it for breast cancer awareness, you can do it for this! Brains are just as important as boobs!!! :)

 

THAT IS EPILEPSY- INJURIES

My epilepsy injuries have consisted of 1 hospital stay with severe concussion, severe punctures to the tongue, chipped teeth, severe lacerations and abrasions to hands and feet, 1 black eye, 5 rides in an ambulance, and an ER visit for my son....... That is epilepsy. Support epilepsy awareness month!

Deaths From Epilepsy

November is Epilepsy Awareness Month. Did you know that more than 50,000 people die each year in the U.S. from seizures?