Showing posts with label living with epilepsy. Show all posts
Showing posts with label living with epilepsy. Show all posts

Thursday, June 25, 2015

Are You Involved In Raising Awareness?

For the past two years I have been trying to get involved with the Epilepsy Foundation Events. Unfortunately, the closest event is an hour and a half from our home. Which makes it a bit hard. Ya know, since I can't drive and all. lol Of course my husband could drive. But we are human after all. It is always nice to be able to get involved with something locally so that you have even more time to be involved with it.

I contacted the Western Tennessee Epilepsy Foundation Chapter in our area in hopes of being able to be an advocate in my area. I would LOVE to be able to put together events locally. However, I never really received an answer nor a follow up call today as I was supposed to have received. Don't get me wrong, I KNOW they are busy and working with little resources. But isn't that even more of a reason to give me the okay to move forward? I undersand that they can't just let anyone do events. But I'm desperate to get involved and looking forward to not driving three hours round trip. Are you involved with any events in your area? If so, I would love to hear which branch you are volunteering with and what type of events you do!

If you're not yet involved, and lucky enough to have events near you, get involved! Every penny counts. Not only to help put on these events but to also raise awareness and provide the education needed on how to respond to someone during a seizure. Some (lI should really say most) people are clueless when it comes to this condition. And let's not forget about a cure! ;)


Monday, March 9, 2015

T-Shirts For Epilepsy Awareness!

Check out these awesome shirts at our online store! They come in a variety of colors, styles, and sizes! There will be more to come! Get your shirt now for March 26th Purple Day for Epilepsy Awareness! 


Epilepsy Awareness Shirts

Sunday, March 8, 2015

Epilepsy Awareness Online Store

I have put together an online store with apparel to help raise Epilepsy Awareness. I will be adding new designs over the next few days. Please help show your support and help raise awareness for this disease!

Sunday, December 15, 2013

Happy 1 year of being seizure free!

It's been a little over a year since I've had a seizure, which makes any epileptic nervous.  You begin asking yourself what you've been doing that has maybe made a difference in you not having an episode.  What can I do to continue to not have an episode?  Or even worse, you become terrified and paranoid that the next seize is just around the corner.  Your life is back to normal.  You can drive.  You can drive your kids.  Your husband can worry a little less. You're still terrified, but hey, you can leave the house.  We spend every second paranoid that it only takes about a minute for all of that to start over.  Almost like an addict starting over on day 1.  Anyone reading this would probably think I was an unappreciative bitch that could never see a glass half full.  But to anyone with epilepsy, this IS appreciation.  This is OUR normal.  This is our life.  And we are LIVING with epilepsy. Happy 1 year anniversary to me! :)