I am a work at home mom and a mother of two. I have created this blog to discuss my journey with Epilepsy. I'm hoping that it can bring awareness as well as educate others about this neurological disorder. And maybe let someone else living with Epilepsy know that they are not alone.
Monday, December 31, 2012
Tuesday, November 20, 2012
Epilepsy and your pet
A little late in the day but better late than never! Ironic that my doggy was diagnosed yesterday with the same neurological condition. :-( help spread epilepsy awareness this month!
Tuesday, November 13, 2012
Scentsy Fundraiser for Epilepsy Awareness
In honor of Epilepsy Awareness Month, I'm using all of my commission for the month of November to donate to the Epilepsy Foundation!! Now is the perfect time to shop! Check out our BOGO FREE Foams along with our sales on Scent and Warmer of the month! Adorable Holiday warmers as well! When you visit my website at www.mycandlebiz.scentsy.us please click on "Epilepsy Awareness Fundraiser" under the "events" to shop under that party. Please let me know if you have any questions! And please feel free to invite friends and share this event! Thanks! :)
NO DRIVING.... AGAIN!
Well, I called my Neurologist yesterday to inform them of all the seizures I've had over the last couple of months. My original diagnosis was JME (Juvenile Myoclonic Epilepsy). This is a form of epilepsy that causes you to have seizures within the first two hours of waking up. I thought they were crazy when they first told me that. lol But it actually exists. All of my seizures over the past 6 years have been in the morning. My most recent seizure, last week, occured at about 10pm just after I got into bed.
After calling my Neurologist, they told me absolutely NO driving. Suprise, suprise. :( I had also tested positive for Lupus a couple of months ago when my primary physician ran a full blood panel. However, he told me it was possible to get a false-positive. I informed the Neuro nurse of this as well. She said, "oh good". lol Then explained that she wasn't saying oh good as in great. But oh good as in maybe we have an explanation for your seizures afterall. Thousands of people with Epilepsy have no cause. I am one of them. I don't WANT to have Lupus. But I DO WANT an explanation. Personally, one of the biggest problems I have with it is the fact that I have no reason or cause or explanation.
The nurse said that the doctor wants to see me on Monday. I guess there could be a few different things he could want to do. I'm guessing either 1. Change my medication again (I'm already on Lamictal and Keppra) 2. Do another MRI and EEG 3. Get to the bottom of the Lupus diagnosis and hope that if we start to treat that, it could help the seizures. Or 4. Discuss other options. I'm not really sure. But as long as I have a Neuro that is willing to keep trying, I can't complain.
After calling my Neurologist, they told me absolutely NO driving. Suprise, suprise. :( I had also tested positive for Lupus a couple of months ago when my primary physician ran a full blood panel. However, he told me it was possible to get a false-positive. I informed the Neuro nurse of this as well. She said, "oh good". lol Then explained that she wasn't saying oh good as in great. But oh good as in maybe we have an explanation for your seizures afterall. Thousands of people with Epilepsy have no cause. I am one of them. I don't WANT to have Lupus. But I DO WANT an explanation. Personally, one of the biggest problems I have with it is the fact that I have no reason or cause or explanation.
The nurse said that the doctor wants to see me on Monday. I guess there could be a few different things he could want to do. I'm guessing either 1. Change my medication again (I'm already on Lamictal and Keppra) 2. Do another MRI and EEG 3. Get to the bottom of the Lupus diagnosis and hope that if we start to treat that, it could help the seizures. Or 4. Discuss other options. I'm not really sure. But as long as I have a Neuro that is willing to keep trying, I can't complain.
Monday, November 12, 2012
Happy Veteran's Day!
I WEAR THE RIBBON
I
have 449 friends on Facebook. 1 in 26 people will develop epilepsy in
their lifetime. That means 17 of them will end up with Epilepsy at some
point in their lives. 1 in every 10 people will have a seizure in their
lifetime. That means almost 45 of them will have at least 1 seizure!
Will it be you? Why wait? Help support Epilepsy Awareness NOW! Please
be kind enough to change your profile picture to this photo or any other
epilepsy awareness photo for the month of November. If you can do it
for breast cancer awareness, you can do it for this! Brains are just as
important as boobs!!! :)
Sunday, November 11, 2012
THAT IS EPILEPSY- INJURIES
My epilepsy injuries have consisted of 1 hospital stay with severe concussion, severe punctures to the tongue, chipped teeth, severe lacerations and abrasions to hands and feet, 1 black eye, 5 rides in an ambulance, and an ER visit for my son....... That is epilepsy. Support epilepsy awareness month!
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