Showing posts with label fear. Show all posts
Showing posts with label fear. Show all posts

Tuesday, March 10, 2015

A New Social Media For Those Affected By Epilepsy

I have found a great tool today. A new social media website that allows you to create a profile and share your story with other members of the site. You can share stories, experiences, and help one another with questions as well as answer others questions. I've even asked a few of my own about medications and side effects. I'm excited to get a few responses. You can join at www.myepilepsyteam.com

Saturday, March 7, 2015

Fear Of Having A Seizure

Unfortunately a few months ago I began having seizures once again. My last grand mal was about a month ago. I'm pretty sure these were brought on by stress of the holidays, the 3 year anniversary of my step mother and fathers passing, as well as work related issues.

I often feel like I've let my husband and children down when I have a seizure after an extended break from this monster. Unable to drive, exhausted, and often injured. These past few episodes were much different than anything before. I have finally began experiencing an "aura". So I know that one is coming on. However I instantly become paralyzed, for a lack of better terms, and am unable to yell for help. 

I believe this disorder is finally catching up with me emotionally. In the past i would get upset and angry after experiencing a seizure. Now it is as if I'm afraid to leave my bed with the fear of falling or having one in front of my 5 year old. 

I believe I may try some essential oils to see if they help with the stress and anxiety. My sleep patterns are also crazy. I began not being able to sleep at night. I fall asleep around 5am and wake around noon. I'm not sure what is contributing to that.  

I'm curious to know if anyone living with epilepsy, especially grand mals, has tried a change in their diet and had luck with reducing seizures. If so, please reach out. I would love to hear your experience.