Friday, March 13, 2015

Is Your Liver Tolerant To Your Seizure Medication?


Is your liver tolerant to your meds? I ask because I have been on Keppra and Lamictal, both, for the past 4 years. I have been on Lamictal for 5 years. I currently take 500mg of Lamictal (Lamotrigine) per day and 1,000mg Keppra (Levetiracetam) per day. However, over the past few months I have began having headaches nearly every day. Some of them turning to migraines. I then began to ask myself if this could be a side effect from the medication.

A few months ago I had went to my general practitioner for routine blood work. She stated that my ANA test was positive, which meant there was a great chance I could have Lupus. I have been tested for Lupus three times, testing positive twice out of the three. Each time I am referred to a rheumatologist and then told that I do not have Lupus. Scary right? My bigger concern was the other information she told me along with the positive ANA panel. She said that my liver functions were a little low but nothing to be concerned about. I didn't think much of it at the time.

A few weeks ago after contemplating if the headaches were caused by my seizure medication, I then remembered the results of my blood work and wondered if there were any connections between the lower liver functions and my medication. It has been a few weeks now since this has crossed my mind and I have been doing research ever since. Of course, they say the internet is a patients worst enemy. But I'm different, right? I'm not sure. But you can bet that I will be asking more questions at my next appointment. Is it possible that general practitioners forget your illnesses when they are speaking to you? Are we just another cattle in the herd?

The following are a few sources I used during my research.

Keppra (Levetiracetam)
  1. WebMd
  2. Livertox
  3. Drugs.com (which I find amusing that it states seizures could be a possible side effect)
  4. RxList.com
  5. DoubleCheckMD.com 

Lamictal (Lamotrigine)
  1. LiverTox.com
  2. Drugs.com
  3. CHealth.com
  4. FDA.gov
  5. Mayoclinic.org
 Now tell me again why my slightly lowered liver functions are nothing to worry about?

Tuesday, March 10, 2015

A New Social Media For Those Affected By Epilepsy

I have found a great tool today. A new social media website that allows you to create a profile and share your story with other members of the site. You can share stories, experiences, and help one another with questions as well as answer others questions. I've even asked a few of my own about medications and side effects. I'm excited to get a few responses. You can join at www.myepilepsyteam.com

Monday, March 9, 2015

Why Are There Never Any Good Side Affects?



I often find myself asking this question! haha

T-Shirts For Epilepsy Awareness!

Check out these awesome shirts at our online store! They come in a variety of colors, styles, and sizes! There will be more to come! Get your shirt now for March 26th Purple Day for Epilepsy Awareness! 


Epilepsy Awareness Shirts

Sunday, March 8, 2015

Epilepsy Awareness Online Store

I have put together an online store with apparel to help raise Epilepsy Awareness. I will be adding new designs over the next few days. Please help show your support and help raise awareness for this disease!

14 Effects of Epilepsy On The Body

HealthLine has recently publish on their website an informative chart showing what effects seizures have on the body and why. This is a great tool to use if you have been recently diagnosed with Epilepsy or have a family member or friend living with Epilepsy. It's quite informative and I highly recommend it. 

http://www.healthline.com/health/epilepsy/effects-on-body

Saturday, March 7, 2015

Fear Of Having A Seizure

Unfortunately a few months ago I began having seizures once again. My last grand mal was about a month ago. I'm pretty sure these were brought on by stress of the holidays, the 3 year anniversary of my step mother and fathers passing, as well as work related issues.

I often feel like I've let my husband and children down when I have a seizure after an extended break from this monster. Unable to drive, exhausted, and often injured. These past few episodes were much different than anything before. I have finally began experiencing an "aura". So I know that one is coming on. However I instantly become paralyzed, for a lack of better terms, and am unable to yell for help. 

I believe this disorder is finally catching up with me emotionally. In the past i would get upset and angry after experiencing a seizure. Now it is as if I'm afraid to leave my bed with the fear of falling or having one in front of my 5 year old. 

I believe I may try some essential oils to see if they help with the stress and anxiety. My sleep patterns are also crazy. I began not being able to sleep at night. I fall asleep around 5am and wake around noon. I'm not sure what is contributing to that.  

I'm curious to know if anyone living with epilepsy, especially grand mals, has tried a change in their diet and had luck with reducing seizures. If so, please reach out. I would love to hear your experience.