A New Social Media For Those Affected By Epilepsy

I have found a great tool today. A new social media website that allows you to create a profile and share your story with other members of the site. You can share stories, experiences, and help one another with questions as well as answer others questions. I've even asked a few of my own about medications and side effects. I'm excited to get a few responses. You can join at www.myepilepsyteam.com

Why Are There Never Any Good Side Affects?

I often find myself asking this question! haha

T-Shirts For Epilepsy Awareness!

Check out these awesome shirts at our online store! They come in a variety of colors, styles, and sizes! There will be more to come! Get your shirt now for March 26th Purple Day for Epilepsy Awareness! 

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Epilepsy Awareness Shirts

Epilepsy Awareness Online Store

I have put together an online store with apparel to help raise Epilepsy Awareness. I will be adding new designs over the next few days. Please help show your support and help raise awareness for this disease!

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14 Effects of Epilepsy On The Body

HealthLine has recently publish on their website an informative chart showing what effects seizures have on the body and why. This is a great tool to use if you have been recently diagnosed with Epilepsy or have a family member or friend living with Epilepsy. It's quite informative and I highly recommend it. 

http://www.healthline.com/health/epilepsy/effects-on-body

Fear Of Having A Seizure

Unfortunately a few months ago I began having seizures once again. My last grand mal was about a month ago. I'm pretty sure these were brought on by stress of the holidays, the 3 year anniversary of my step mother and fathers passing, as well as work related issues.

I often feel like I've let my husband and children down when I have a seizure after an extended break from this monster. Unable to drive, exhausted, and often injured. These past few episodes were much different than anything before. I have finally began experiencing an "aura". So I know that one is coming on. However I instantly become paralyzed, for a lack of better terms, and am unable to yell for help. 

I believe this disorder is finally catching up with me emotionally. In the past i would get upset and angry after experiencing a seizure. Now it is as if I'm afraid to leave my bed with the fear of falling or having one in front of my 5 year old. 

I believe I may try some essential oils to see if they help with the stress and anxiety. My sleep patterns are also crazy. I began not being able to sleep at night. I fall asleep around 5am and wake around noon. I'm not sure what is contributing to that.  

I'm curious to know if anyone living with epilepsy, especially grand mals, has tried a change in their diet and had luck with reducing seizures. If so, please reach out. I would love to hear your experience. 

Happy 1 year of being seizure free!

It's been a little over a year since I've had a seizure, which makes any epileptic nervous.  You begin asking yourself what you've been doing that has maybe made a difference in you not having an episode.  What can I do to continue to not have an episode?  Or even worse, you become terrified and paranoid that the next seize is just around the corner.  Your life is back to normal.  You can drive.  You can drive your kids.  Your husband can worry a little less. You're still terrified, but hey, you can leave the house.  We spend every second paranoid that it only takes about a minute for all of that to start over.  Almost like an addict starting over on day 1.  Anyone reading this would probably think I was an unappreciative bitch that could never see a glass half full.  But to anyone with epilepsy, this IS appreciation.  This is OUR normal.  This is our life.  And we are LIVING with epilepsy. Happy 1 year anniversary to me! :)